If you or a loved one ever faced a life threatening diagnosis, you’ve learned about what worked and what didn’t work. That is the most powerful story in health care today.

SRI International (formerly the Stanford Research Institute) and I are developing TulaHealth, the place where you will find the best wisdom of the crowd. It starts with The Tula Story Project. I am working with non-profits and health care stakeholders to create a database of patient wisdom.
Your donation supports our mission, underwriting the cost of editing and producing. Any amount enables me to donate patient stories to non-profit websites. You’ll see some of these stories right here on Carol Lin Reporting. In April 2009, a Tula Story Project will launch with the Bonnie J. Addario Lung Cancer Foundation where our stories will help patients find the right information that could save their lives.

1. CancerCare.org
2. TheLungCancerFoundation.org
3. Engage With Grace

“Tula” is based on a Scandanavian word that means “to come together, join us”.

Thank you for doing just that.
I’m here for you,

Carol Lin

Judi Carr’s career as an oncology nurse meant she practiced medicine on a daily basis. Her life as a breast cancer patient means she practices patience and her will to live on an minute by minute basis

I met Rick and Jennifer Carlson on a cold day in Omaha, Nebraska. They’ve been married for more than thirty years and are now navigating through his treatment for Esophageal cancer. It was an obvious question. I wanted to know, after all these years, how cancer has influenced their relationship.

Their love for each other is obvious.

 SEIZE THE DAY.

Many thanks to those who emailed me good wishes and shared how the story resonated with you. Here are just a few messages that really touched me:

“I just heard your piece on your mother on NPR’s Day to Day thisafternoon and the most succinct thing I can say is “Wow, Wow andtriple Wow!” I too have an aging parent in quickly declining health(in my case my father, who also was diagnosed with cancer).  Like youalso, I have been trying to “peel the onion” of his life, but because of dementia, it is even more challenging.”

“I am dealing with many of the same issues with my mom, her cancer and her overbearing, pessimist attitude. It’s so hard to love someone so much and still wrestle with feeling like oh my god she’s driving me crazy, but she’s supposed to be a saint because she has cancer.” “we can’t stop people from being themselves and doing the best they can...”